Blood and Beyond – Rethinking Blood Use
www.bloodandbeyond.com
Resources
Useful Links
A curated directory of external organisations, guidelines and support resources for haematology nurses and healthcare professionals.
Supportive Care/Therapies
13 linksBlood Cancer UK
https://bloodcancer.org.uk/
Foundation for Women and girls with Blood disorders
www.fwgbd.org
Look Good Feel Better
https://lookgoodfeelbetter.co.uk/
Mummy’s Star
https://www.mummysstar.org/
National Comprehensive Cancer Network
https://www.nccn.org/guidelines/category_1
National Comprehensive Cancer Network – Patient guidelines
https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients
Nurse Experts for Vascular Access and Maintenance
https://www.nevam.ch/
Scholing CAR T-celtherapie (umcg.nl)
https://onderwijs.umcg.nl/-/scholing-car-t-celtherapie
Teenage Cancer Trust
https://www.teenagecancertrust.org/
Untire – beating cancer fatigue together
www.untire.me
Youth Cancer Trust
https://www.youthcancertrust.org/
Information on Research
8 linksCaring for the Caregiver, National Cancer Institute (NCI)
www.cancer.gov/cancertopics/coping/caring-for-the-caregiver
Chemocare – Information on chemotherapy agents including managing side effects
http://chemocare.com/default.aspx
Family Caregiver Alliance
https://www.caregiver.org/
Hovon
https://www.hovon.nl
Krebsgesellschaft
https://www.krebsgesellschaft.de/
National Alliance for Caregiving
https://www.caregiving.org/
National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org
National Institute for Health and Care Excellence (NICE)
https://www.nice.org.uk/
Professional Organisations
17 linksDeutsche Arbeitsgruppe KMT/SZT der Pflegenden
www.kmt-ag.de
DGHO
https://www.dgho.de/
EBMT
www.ebmt.org
EBMT (UK) NAP (National and Allied Professions)
www.ebmt.co.uk
EBMT Swiss NG
www.ebmtng.ch
EHA
www.ehaweb.org
European Oncology Nursing Society (ONS)
www.cancernurse.eu
Haematology Association of Ireland
www.haematologyireland.ie
Haematology Association of Ireland Nurses Group
www.haematologynursesireland.ie
International Waldenstrom’s Macroglobulinemia Foundation
https://iwmf.com/
Lymphoma Action UK
https://lymphoma-action.org.uk/
Lymphoma Coalition
www.lymphomacoalition.org
Lymphoma Cutaneous Lymphoma Foundation
https://www.clfoundation.org/
National Cancer Institute (NCI), Division of Cancer Control & Population Sciences, Office of Cancer Survivorship
https://cancercontrol.cancer.gov/
Onkologiepflege Schweiz
https://www.onkologiepflege.ch/
Haemoglobinopathies
3 linksSickle Cell Disease
https://www.hematology.org/education/patients/anemia/sickle-cell-disease
Thalassaemia International Federation (TIF)
https://thalassaemia.org.cy/
touchHAEMATOLOGY | Achieving effective lifespan care in sickle cell disease: From recognizing the burden to novel therapeutics
https://touchhaematologyime.org/achieving-effective-lifespan-care-in-sickle-cell-disease/
Myeloma
5 linksEuropean Myeloma Network
https://www.cancer.org/health-care-professionals/american-cancer-society-survivorship-guidelines.html
Myeloma Australia
www.myeloma.org.au
Myeloma Ireland
https://www.multiplemyelomaireland.org/
Myeloma Patients Europe
https://www.mpeurope.org/
Myeloma UK
https://www.myeloma.org.uk/
Leukaemia/Myeloid Disorders
11 linksAA MDS International Foundation
https://aamds.org
ALL – Acute Lymphoblastic Leukemia Support
https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/acute-lymphoblastic-leukemia-2/
ALL – Acute Lymphoblastic Leukemia Treatment Regimens
https://www.cancertherapyadvisor.com/home/cancer-topics/hematologic-cancers/leukemia-treatment-regimens-acute-lymphoblastic-leukemia-all/
ALL Advocates Network
https://acuteleuk.org/
Know AML
https://know-aml.com/
MPN Advocates Network
https://www.mpn-advocates.net/
MPN Voice
https://www.mpnvoice.org.uk/
T2Evolve
https://t2evolve.com/
The Aplastic anaemia Trust
https://www.theaat.org.uk/
Touch Haematology
https://touchhaematology.com/
Touch Medical Media
https://www.touchmedicalmedia.com/
Chronic Leukaemias
8 linksCLL – American Cancer Society
https://www.cancer.org/cancer/types/chronic-lymphocytic-leukemia.html
CLL Advocates Network
https://www.clladvocates.net/
CLL Society
https://cllsociety.org/cll-sll-patient-education-toolkit/
CML – American Cancer Society
https://www.cancer.org/cancer/types/chronic-myeloid-leukemia.html
CML Advocates Network
https://www.cmladvocates.net/
Leukemia & Lymphoma Society
https://www.lls.org/
The European Leukemia Net
https://www.leukemia-net.org/
The Leukemia Patient Advocates Foundation – LePAF
https://www.lepaf.org/
ITP
10 linksAmerican Society of Haematology
https://www.hematology.org
European Haematology Association
https://library.ehaweb.org
ITP Foundation
www.itpfoundation.org
ITP International Alliance
www.globalitp.org
ITP Patiëntenvereniging Nederland
www.itp-pv.nl
ITP Support Association
www.itpsupport.org.uk
ITP-Selbsthilfegruppe Giessen
www.itp-information.de
ITPANDME.Com
www.itpandme.com
Platelet Disorder Support Association
www.pdsa.org
Platelets on the web
www.ouhsc.edu/platelets
CAR T & Immunotherapies
3 linksCancer Champions. Chemotherapy, Immunotherapy, Targeted Therapy.
https://cancer-champions.com
Cancer Support Community
https://www.cancersupportcommunity.org
National Comprehensive Cancer Network (NCCN)
https://www.nccn.org