Links

Supportive Care/Therapies

Multinational Association for Supportive Care in Cancer (MASCC)
www.mascc.org
English
Blood and Beyond – Rethinking Blood Use
www.bloodandbeyond.com
English
Scholing CAR T-celtherapie (umcg.nl)
https://onderwijs.umcg.nl/-/scholing-car-t-celtherapie
Dutch
Untire – beating cancer fatigue together
www.untire.me
English
Nurse Experts for Vascular Access and Maintenance
https://www.nevam.ch/
English
Foundation for Women and girls with Blood disorders
www.fwgbd.org
English
National Comprehensive Cancer Network
https://www.nccn.org/guidelines/category_1
English
National Comprehensive Cancer Network – Patient guidelines
https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients
English
Youth Cancer Trust
https://www.youthcancertrust.org/
English
Mummy’s Star
https://www.mummysstar.org/
English
Blood Cancer UK
https://bloodcancer.org.uk/
English
Look Good Feel Better
https://lookgoodfeelbetter.co.uk/
English
Teenage Cancer Trust
https://www.teenagecancertrust.org/
English

Information on Research

Krebsgesellschaft
https://www.krebsgesellschaft.de/
German
National Institute for Health and Care Excellence (NICE)
https://www.nice.org.uk/
English
Excellence
http://chemocare.com/default.aspx
English
Chemocare – Information on chemotherapy agents including managing side effects
http://chemocare.com/default.aspx
English
Family Caregiver Alliance
https://www.caregiver.org/
English
Caring for the Caregiver, National Cancer Institute (NCI)
www.cancer.gov/cancertopics/coping/caring-for-the-caregiver
English
Hovon
https://www.hovon.nl
Dutch & English
National Alliance for Caregiving
https://www.caregiving.org/
English
National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org
English

Professional Organisations

Onkologiepflege Schweiz
https://www.onkologiepflege.ch/
German
Deutsche Arbeitsgruppe KMT/SZT der Pflegenden
www.kmt-ag.de
German
DGHO
https://www.dgho.de/
German
EHA
www.ehaweb.org
English
EBMT Swiss NG
www.ebmtng.ch
English
EBMT
www.ebmt.org
English
EBMT (UK) NAP (National and Allied Professions)
www.ebmt.co.uk
English
Haematology Association of Ireland Nurses Group
www.haematologynursesireland.ie
English
Haematology Association of Ireland
www.haematologyireland.ie
English
GITMO. Gruppo italiano per il trapianto di midollo osseo
www.gitmo.it
Italian
GIIMA. Gruppo italiano infermieristico mobilizzazione ed aferesi
www.giima.eu
Italian
American Cancer Society
https://www.cancer.org/health-care-professionals/american-cancer-society-survivorship-guidelines.html
English
National Cancer Institute (NCI), Division of Cancer Control & Population Sciences, Office of Cancer Survivorship
https://cancercontrol.cancer.gov/
English
European Oncology Nursing Society (ONS)
www.cancernurse.eu
English
Lymphoma Cutaneous Lymphoma Foundation
https://www.clfoundation.org/
English
Lymphoma Coalition
www.lymphomacoalition.org
English
Lymphoma Action UK
https://lymphoma-action.org.uk/
English
International Waldenstrom’s Macroglobulinemia Foundation
https://iwmf.com/
English

Haemaglobinopathies

Thalassaemia International Federation (TIF)
https://thalassaemia.org.cy/
English
Sickle Cell Disease
https://www.hematology.org/education/patients/anemia/sickle-cell-disease
English

Myeloma

European Myeloma Network
https://www.cancer.org/health-care-professionals/american-cancer-society-survivorship-guidelines.html
English
Myeloma Patients Europe
https://www.mpeurope.org/
English
Myeloma UK
https://www.myeloma.org.uk/
English
Myeloma Ireland
https://www.multiplemyelomaireland.org/
English
Myeloma Australia
www.myeloma.org.au
English

Leukaemia/Myeloid Disorders

ALL Advocates Network
https://acuteleuk.org/
English
MPN Voice
https://www.mpnvoice.org.uk/
English
MPN Advocates Network
https://www.mpn-advocates.net/
English
Know AML
https://know-aml.com/
English
Leukemia & Lymphoma Society
https://www.lls.org/
English
The European Leukemia Net
https://www.leukemia-net.org/
English
ALL – Acute Lymphoblastic Leukemia Treatment Regimens
https://www.cancertherapyadvisor.com/home/cancer-topics/hematologic-cancers/leukemia-treatment-regimens-acute-lymphoblastic-leukemia-all/
English
ALL – Acute Lymphoblastic Leukemia Support
https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/acute-lymphoblastic-leukemia-2/
English

AA MDS International Foundation
https://aamds.org
English
The Aplastic anaemia Trust
https://www.theaat.org.uk/
English

Touch Haematology
https://touchhaematology.com/
English
Touch Medical Media
https://www.touchmedicalmedia.com/
English
T2Evolve
https://t2evolve.com/
English

Chronic Leukaemia’s

CLL – American Cancer Society
https://www.cancer.org/cancer/types/chronic-lymphocytic-leukemia.html
English
CML – American Cancer Society
https://www.cancer.org/cancer/types/chronic-myeloid-leukemia.html
English
CML Advocates Network
https://www.cmladvocates.net/
English
CLL Advocates Network
https://www.clladvocates.net/
English
CLL Society
https://cllsociety.org/cll-sll-patient-education-toolkit/
English
Leukemia & Lymphoma Society
https://www.lls.org/
English
The European Leukemia Net
https://www.leukemia-net.org/
English
The Leukemia Patient Advocates Foundation – LePAF
https://www.lepaf.org/
English

ITP

American Society of Haematology
https://www.hematology.org
English
European Haematology Association
https://library.ehaweb.org
English
ITP Support Association
www.itpsupport.org.uk
English
ITP Foundation
www.itpfoundation.org
English
Platelet Disorder Support Association
www.pdsa.org
English
ITPANDME.Com
www.itpandme.com
English
ITP International Alliance
www.globalitp.org
English
Platelets on the web
www.ouhsc.edu/platelets
English
ITP-Selbsthilfegruppe Giessen
www.itp-information.de
German
ITP Patiëntenvereniging Nederland
www.itp-pv.nl
Dutch

CAR T & Immunotherapies

National Comprehensive Cancer Network (NCCN)
https://www.nccn.org
English
Cancer Support Community
https://www.cancersupportcommunity.org
English
Cancer Champions. Chemotherapy, Immunotherapy, Targeted Therapy.
https://cancer-champions.com
English